Things I'm Thinking About

Year: 2018 (Page 3 of 4)

A New Reality

My 80-year-old mother has Alzheimer’s, a brain disease that causes a slow decline in memory, thinking and reasoning skills. We started noticing early signs of dementia in her about six years ago. It has not been an easy journey for our family, and it has been different for all of us. This is my perspective on how the changes affected my mom and the people around her that love her. 


As the Alzheimer’s tunneled deeper into my mom’s brain, the changes became obvious. She was still able to carry on a conversation and act normally in many ways, but she had become childlike and dependent.

A couple of times, my dad had to leave on a trip, and Mom came to stay with me while he was gone; it became too hard for her to stay home alone, and I was concerned for her safety. During her stays, she followed me around the house, asking to help, wanting to do something useful. She was restless, looking for something to do.

To keep her occupied, we worked together on albums with pictures from her childhood and early years of marriage. She still remembered the people and places from long ago. We separated the pictures into piles, sorting them by family and year. As I was taping them down and writing the names and dates she told me, she picked up a pile and started going through it again. After I moved it away from her, she picked up another one. When I wasn’t looking, she started pulling out the pictures she didn’t like and putting them in the trash. I tried to explain that I wanted all of them, but she couldn’t understand why. I scrambled to get the pictures into the book before she undid all our work.

She worked with me in the kitchen, too, happy to do dishes and other tasks, as long as I only gave her one at a time. If there was more than one step, she lost track. She has always loved to iron, so I set her up with the ironing board, iron and the Niagara Spray Starch that she likes, and gathered every shirt I could find that could be pressed. She ironed happily for a long time.

It reminded me of doing projects with a toddler. So funny and sweet, but because it was my mother, so heart-breaking.

In groups, she smiled and looked pleasant, but I could tell she wasn’t sure what was going on. Something changed in her eyes; even in pictures, they looked distant and flat. We had a 50th birthday party for my sister at our house, and my mom said to me several times, “Judy, is this your house?” She stopped one of my daughters during the party and said, “Who is this party for?”

Her senses began to betray her too. When we were out to lunch at a local barbecue place, she was convinced that something was burning, even though my dad and I assured her that we did not smell anything. Food tasted and smelled strange or had no flavor at all.

She complained of an almost constant headache, but the doctors could find no physical cause. It dogged her day and night. Sometimes when I asked her about it, she would say it was quiet. It must have felt like a banging, a disorienting din. Eating hard foods gave her some relief; she told me that the “crunch, crunch, crunch” helped.

My mom knew  something was happening, but she did not understood what it was. I’m afraid she thought that it was her fault, and that she needed to try harder to think better, as if she could will herself out of her cobwebby confusion. She spent a lot of time agonizing over why she couldn’t think right, and why this would happen to her now when she was supposed to be enjoying her Golden Years with Dad. I don’t think she ever believed that her mind was being stolen away by a disease.

I wish we could have stayed in this relatively easy phase longer. Alzheimer’s is progressive, but there is no real timeline. Changes can come quickly or slowly; it’s impossible to gauge where we are in the process. We only know that it will get worse.

I knew changes were coming again when my mom’s anxiety began to grow, pushing almost every other thought out. Fear, suspicion and guilt turned most conversations into desperate pleas for help. She started using a different voice, high and quavering. Even her faith couldn’t break through the neural pathways blocked and crusted with dementia. False thoughts flitted across her consciousness to torment her, like the twinges of restless legs that make the sufferer twitch and keep moving, unable to rest.

She seemed to shrink. She became so thin; she stopped eating normal meals, preferring candy and ice cream, and then only little bites. Her thoughts seemed shrunken too, down to the bare bones: Help me. Don’t leave me. I’m sorry I was so bad. I’m sorry I hurt you so much.

When she couldn’t make calls anymore, we decided to end her phone service. I didn’t get around to actually cancelling it right away, though, and one afternoon I was walking though Safeway and my phone rang. The screen said “Mom”–a caller ID I never thought I’d see again. I answered it, expecting to hear my Dad’s voice, using her phone for some reason. But it was my mom’s voice I heard, not the little scared voice, but her normal voice. 

–Is this Judy Elizabeth Sunde?  I mean Hanawalt! Of course I know it’s Hanawalt!

Yes! Hi Mom! How are you?

–I’m doing fine. Just wanted to hear your voice. It makes me feel better. How are all the kids? How is Steve?

Our conversation went on for a few more minutes. I kept asking her questions, not wanting to hang up, trying to stay suspended in this odd, rare moment of lucidity. I wished this could be reality instead of the new one I was trying to accept.

Warning Signs

My 80-year-old mother has Alzheimer’s, a brain disease that causes a slow decline in memory, thinking and reasoning skills. We started noticing early signs of dementia in her about six years ago. It has not been an easy journey for our family, and it has been different for all of us. This is my perspective on how the changes affected my mom and the people around her that love her. 


The first clues that my mom was changing were small, and it took us a long time to piece them together and understand what was happening.

She was always a busy person, never without a project or a task: she loved to write, work in her home and garden, knit, read, travel and host gatherings at her house. I never knew her to be bored or idle. When the changes started, it seemed like she had lost her confidence; she wasn’t sure what to make for dinner, what to pack for a trip, or what book to read. She asked me for suggestions and ideas, writing them down and intending to do better, but she couldn’t seem to get started. We thought she needed some motivation, or some better planning.

Sometimes, she called my sons by my cousins’ names, or my daughter by her sister’s name. She asked questions over and over, so innocently, with no idea that she had asked the same thing just minutes before. Her smart phone became a puzzle; she couldn’t remember how to look at photos, open her email or check Instagram. She wanted so much to spend her time doing valuable work, but she was having a hard time with the tasks.

One Sunday afternoon when my parents were visiting us, we went to Golden Gate Fields to see the horses run. “I’ve never been to a racetrack before, have I?’ she asked me. I reminded her she had, many years ago when she and dad took my horse-loving daughter on a trip to Kentucky and went to see a horse race. “Oh, yes.” she said. A few minutes later, the same wide-eyed question, “I’ve never been to a racetrack before, have I?”

Reading had always been a favorite pastime, but she began to read the same page of a book over and over, making little progress on the story. She spent hours looking at her calendar, flipping pages back and forth, writing things down, but she couldn’t grasp the big picture of when her appointments were, or when I was going to come visit again.

My dad and I played a game of Yahtzee with her one evening, laughing and having a great time together. At the end of the game, she did her own adding to tally up her score. According to her calculations, she won the game with an amazing score in the high 800’s. I looked over her score card; her adding  had become mere guesswork. Instead of explaining her mistakes, we congratulated her on her win.

One day, we were driving to Boulder, and the mountains in the high county had snow on them, but the closer Flat Irons were bare. “Isn’t that strange,” she asked, “that the higher mountains don’t have snow on them, but the lower ones do?” Her eyes and her mind were playing tricks on her, making spacial relationships hard to understand.

When I was alone with my dad, I asked him if he was noticing the same things. He was, but we were not yet able to put it all together; neither of us wanted to face what might be ahead. I was beginning to realize, though, that she was slipping away.

Though I was losing my mother, at the same time, I had more of her than ever before. When she lost her ability and ambition to do all the traveling and working that kept her so busy, she had time to sit and talk. Her short-term memory was spotty, but her memories of the past were full and vivid. When we were together, all she wanted to do was be with me.  There was no where she needed to be, and nothing to hurry off to do. It was just a moment, a calm before the storm. I am so grateful for that short, sweet time.

It’s Complicated

My relationship with math has been complicated. 

My earliest memory of math is a mimeographed sheet of paper with a grid on it, labeled 1 to 12 on the top and left side. We were supposed to memorize the multiplication table well enough to fill that sheet out in a minute or two, with a timer ticking as we scribbled in the answers. I see the point—we would know it so well that we wouldn’t even have to think about multiplication when doing more advanced math problems.  I didn’t practice enough at home, and even now I  get bogged down in the middle of the 7’s and 8’s (I’m beginning to see a pattern here; I wasn’t wearing my eye patch faithfully then either). I didn’t pass the first few tries, so I had to go into a little office at the back of class to take the test alone, a straggler. Eventually I did pass, but my relationship with math was starting to feel uncomfortable.

In middle school, I was in a good place with math. I enjoyed it, class was fun, and I got the hang of the slide rule. I met a friend in class, and over the next few years, we spent hours on the phone doing our homework together, even when our mothers picked up the extension in the other room and ordered us to hang up. We got our problem sets done, but we also listened to music, talked and laughed about events and crushes, and just hung out over the telephone wires. I wonder if our mothers appreciated how easy we made their parenting when we were tethered to the phone; even though we tied up the single line in the house for so long, they knew exactly what we were up to and we were never late for dinner.

In geometry, when Mr. Camp had us come to the board to do proofs, that my feelings about math got more complicated. All my life, people have loved the fact that I turn a deep shade of red when I’m embarrassed—and not just because I do something dumb—I turn red when I feel singled out or put on the spot, or really, I turn red about almost everything. Apparently people who don’t have this trait think it’s hilarious and they love to point it out. Of course, that makes me blush more, which, apparently is even funnier. 

Because he found this phenomenon so endearing, a friend of mine whispered around the class to laugh when I finished my work on the board one day.  I turned around, ready to hear from the teacher that I had done the proof right, and instead the whole class began to laugh. I was confused, and of course, I turned  a brilliant shade of red. What did I miss? What was the joke? My red face must have been funny to see, but my sense of ease in math class took a hard hit. I pretended to laugh too and sat down.

It was just a joke. I had good friends in the class. My proof was probably ok. Maybe the friend who did this would have gotten a good laugh out of it if someone did it to him. I know moments like this happen to almost everybody in their childhood. At a high school reunion, I asked the jokester why he pulled that prank on me, and he didn’t remember it. He was sorry, but not that sorry; I’m sure he had  no idea what a lasting memory it would be for me.

I kept taking the next math class because it was the expected path, and most of my friends were doing it. By my senior year, I was taking calculus, and each quarter, my grade slipped lower–along with my motivation. It wasn’t working for me to memorize the formulas and grind out the problems. Calculus requires, I guess, some deeper connection with the concepts, and I wasn’t feeling it. The fact that I finished the year—and took the Advanced Placement test and got a passing grade—is so unbelievable to my friends and family that it’s my secret weapon in a game of Three Truths and a Lie (oops, it’s out there now!). 

In college, I put math behind me and never looked back. It was humanities all the way for me.

There is one teacher at Berkeley High that may have made a difference in my math experience if I had been in her class. She is so excited about everyone exploring the wonders of math, especially the ones who come to class feeling like they can’t learn it. I’ve heard her telling students and parents alike, “Yes! You can do math!” Her love for math is contagious.

At back-to-school nights, I visited her classroom a few times when one of my kids was her student for AP Calculus. As the parents took seats, she passed out a problem to solve. She planned for us to spend the 15-minute period discovering the concepts with her enthusiastic coaching. She wanted us to see what our kids were learning and that we could do it too, but a sense of dread gripped me at the thought of being called on. I let the parents next to me work on the exercise and avoided eye contact; I was not going to put myself in blushing danger. Maybe if I was in high school, she could helped me connect with the world she was so enthusiastic about. Maybe.

It doesn’t matter; I don’t think we were meant for each other. My relationship with math is simple now. We have gone our separate ways.

Mom Brain

I think every mother knows about “mom brain.” It starts in pregnancy and persists through the first year of baby’s life–or longer. It’s a foggy, forgetful, fuzzy state of being that makes new moms feel like they are sleepwalking through their days. Some people call it “momnesia.”

In my first pregnancy, I felt like an alien was taking over my brain–it wasn’t working the way it used to, and I felt like I couldn’t trust it. Toward the end of another pregnancy, I had to stop driving; I was worried about my absent-mindedness, and didn’t think I could navigate the roads safely. My group of friends called it “placenta brain;” our minds had been commandeered, along with the rest of us, for the nurture and growth of baby.

I read an article recently, “Why ‘Mom Brain’ is Good for Mothers and Babies,”  that confirms that mom brain is real, and it’s a positive thing. It’s also worse than I imagined. Gray matter is permanently lost. No wonder moms are forgetful, absentminded and emotional!

Pregnant women lost a significant amount of gray matter, in a pattern similar to what happens during puberty—another time when women experience a surge of sex hormones like estrogen. This adolescent “synaptic pruning” doesn’t mean we get dumber as teens. Instead, the brain is simply becoming more efficient and refined, in a process associated with healthy cognitive and emotional development. In other words, the teen brain is “leveling up” into greater maturity as it sheds extraneous connections between neurons.”

The biggest changes were concentrated in regions of the brain that help us navigate social interactions and form close relationships with others. The areas that showed pruning were specifically related to the “theory of mind” network—that is, the part of the brain that tries to figure out what people are thinking and feeling. The researchers speculate that this may enhance mothers’ ability to accurately guess their infant’s emotional states and meet their needs.

Mothers’ brains are rewired to better understand the thoughts and feelings of others, enabling them to anticipate and meet their babies’ needs. So yes, it seems that–as many a teen has feared–a mother can read her child’s mind. Her brain has been remodeled to super-power status. I believe we have always sensed this; the idea of mothers having “eyes in the back of their head” expresses the same idea. Now we  know that it’s not extra eyes, it’s fine-tuned gray matter.

To give babies the best chance of survival, pregnancy hormones signal the brain that a big, big change is coming and some radical housekeeping is needed immediately to prepare for the demands this tiny, helpless human is going make upon arrival. Guidebooks and supportive family and friends are helpful, but in the middle of the night when the baby is still crying, it comes down to just the two of you: mom verses baby. A mother must be able to understand and meet her baby’s needs, or at least understand that her baby is in a very, very bad mood, she shouldn’t take it personally and it will eventually pass (wait–I may be thinking of teens again).

The pregnancy brain-pruning process may give mothers a jump-start on maternal instinct, but that doesn’t mean that a man, or a woman who hasn’t given birth, cannot reach the same place of relational insight and caring. According to an article in Psychology Today, brain changes occur in dads as well as moms, but maybe not in such a head-spinning way. The “leveling up” to relational maturity can be learned; there is no doubt that caregivers other than mothers are able to step in and master the art of speaking baby.

The symptoms of mom brain do fade, but the benefits are permanent. When the baby gets a little older, life doesn’t feel quite as overwhelming. Equilibrium eventually returns. Mothering can then become a way of relating to the world, with eyes that are able to see everybody as somebody’s baby, and respond to them with compassion and care.

Foreshadowing

Last year, I was in Albuquerque visiting my daughter, staying in a little one bedroom AirBnb filled with antiques. The owners called it the “Casita.” One morning, my daughter and her fiancé came to pick me up for the day’s adventures, and brought their two dogs along. While we were packing up to leave, the dogs were sniffing around outside. Somewhere in the bushes, they found a tiny baby bird, no feathers, dead. They dropped it by the front door.

The day before, another of my daughters had texted us with the sad news that during a wind and rain storm, the hummingbird who was sitting on a nest in the front yard had left her perch in the tree when the branches were lashing around in the storm. She had been sitting there for days, caring for two navy-bean size eggs. When my daughter peered into the nest the next morning to see how the eggs had fared, she saw two tiny, inch-long baby hummingbirds in the nest, naked and still. 

My daughter came into the casita after seeing the little bird on the doorstep and said soberly, “If we were in a book, this would mean something.”

I was so proud of her. My love of foreshadowing must have rubbed off.

My favorite thing to read is a novel. I love long stories, full of characters whose lives intersect and diverge until all the plot lines are tied together at the end. The resolution only works for me if it makes sense for the characters and their situation, and the trick that makes it all fit together is foreshadowing.

Foreshadowing makes it possible to have plot twists. It holds the story together when the plot is pulling it apart. Without the twists, the story is boring; without the foreshadowing, the narrative is a string of disjointed, disconnected action. The puzzle pieces of the story have to fit together and make a complete picture when they are assembled. One without the other feels either shallow or false.

Sometimes foreshadowing is obvious and you know something is coming. Sometimes, it is subtle, or even mysterious. My favorite kind comes in the little details–maybe they tug a little or seem a little odd, or maybe not–but when the big twist comes, they take on a new meaning. Flipping back through the pages, it all makes sense. What was an offhand comment or an insignificant fact at first reading becomes the clue that ties the story together.

It doesn’t ruin the surprise; it makes the surprise richer because it was there, hidden, all the time. It is satisfying because it is consistent. The puzzle piece snaps into place. I’m not talking about predictability; that’s almost as bad as complete randomness. The fun comes from discovering a pattern or a plan that was there all along.

When I am immersed in a novel, sometimes the suspense is too much. I am so worried about what is going to happen that reading isn’t enjoyable anymore. Will the character I love survive? Will what’s lost ever be found? I can’t read fast enough to outpace my anxiety.

True confession: When it’s too much to bear, I turn to the last page to see who is still there.  It doesn’t ruin it for me; it gives me courage to go back and live through whatever is coming with the characters, even if the ending isn’t happy. At least I know what’s coming.

Life isn’t a novel, though. I can’t say that a strange occurrence means that some plot twist is about to happen in my life. I’m not able to relieve my anxiety by checking the ending. The closest I can come is looking back after I have some distance from a situation and finding some understanding. Looking back, events and problems seem clearer, and there is a sense that what seems random at the time is leading to something.

Hindsight.

When my children were babies and young children, I learned their likes and dislikes, their patterns and how to respond to their needs. I memorized their sweet faces. But who they would grow up to be was a wide-open question, a mystery. Now that they are adults, I look back and recognize them. They were exactly themselves from the beginning, but I couldn’t project into the future to see it. My imagination wasn’t big enough.

As a young girl, I sat in my big, comfy chair reading for hours. I wished that there was a book that would never end; a world full of characters I love that I could stay immersed in, never reaching the last page. With a little hindsight on my side now, I can see that my life is my great story, full of plot twists, true love, adventure and comedy. No foreshadowing, but I think it will somehow make sense in the end.

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